Episode 75: Finding A Cure – Sanfilippo Syndrome

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This is a very special episode of the Informant Podcast. Jana and Chester talk with Roy who is the father of a very special little boy named Reed who has Sanfilippo Syndrome. Here is reprint (edited to include video and images) of the post made my Chester.

MW Players, I need your help. I need you all to vote for a team so they can raise money to cure a disease that kills children.

The Disease
Sanfilippo syndrome (MPSIIIA) affects about 1 in every 70,000 births. The children are born missing an enzyme needed to breakdown MPS (a substance made by the body), so it gets stored up in the cells and cannot be removed. The children look and act normal the first few years of their lives, but as more and more MPS accumulates in the cells of the brain the children show signs they are unable to learn and continue progressing. The extra MPS in the cell causes it to expand until the cell can hold no more and it dies. The disease is progressive and the child become more afflicted each year. The children stall out in cognitive abilities at the age of a toddler usually unable to potty train or take care of themselves at all. For a while the child can maintain only what they already know. In the final stage of the disease the brain damage is so sever they start to die slowly. The children actually unlearn how to speak, walk and even swallow. The average life expectancy of a child with Sanfilippo syndrome is less than 15 years of age.

Please watch this short video to learn more:


Go Vote
Gene therapy has shown a lot of promise lately and has been successful in curing small animals with Sanfilippo syndrome. The total cost to bring a gene therapy viral vector to clinical trial in humans is over $1.2 Million dollars. Team Sanfilippo has the opportunity right now to win $250,000.00 in the “Vivint gives back project” if they get the most votes by Aug. 27th. Please vote once a day for Team Sanfilippo and help save wonderful children that have a condition that is solvable with funding!

Voting is done via Facebook:

Go Here to vote:

The first time you must click, “like” the page, login, allow, and scroll to the bottom of the page and hit the vote button.

Voting is done via Facebook:

The first time you must click, “like” the page, login, allow, and scroll to the bottom of the page and hit the vote button. The next day, you just click the login button, and scroll down and hit vote.

You can vote everyday until Aug. 27th. Have your vote post to your news feeds in hopes that your Facebook friends will see it and vote too. Every vote is needed and does count.

Thank you all for helping to find a cure!
[MIG] Chainsaw Chester
Godfather

Click Play to listen to Episode 75 now.

In todays episode, while there is nothing really new in Mafia Wars, Jana and Chester discuss about the Sanfilippo Syndrome and places that work with this disease. They have a special guest, Roy, who talks about his son, which has this syndrome, and he describes what this disease is all about and treatment options for it. Roy also lets us know about treatments they are working on. For more information check HERE.

Article written by Jennifer Patterson, Creator of the MW Loot Lady Blog, The Mafia Wars Loot Lady Facebook Fan Page and Co-Host of The Informant Podcast. All material is protected by copyright law